Prof Anne MacFarlane

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Prof Anne
MacFarlane
Phone: 
+353 (0) 61 202171
Room: 
GEMS3-013
Email: 
Anne.MacFarlane@ul.ie
Role: 
Professor of Primary Healthcare Research
Introduction: 

Anne is Professor of Primary Healthcare Research at the School of Medicine, the first social scientist to hold a Chair in academic primary care in Ireland. She has specialist expertise in migrant health and participatory health research. She leads the Public and Patient Involvement Research Unit at the School of Medicine, which is designated as a WHO Collaborating Centre for Migrant’s Involvement in Health Research. The Unit is inter-disciplinary with members from general practice, biostatistics, physiotherapy, sociology, psychology and anthropology.

Anne collaborates with the World Health Organization Regional Office for Europe, Division of Policy and Governance for Health and Well-being. She is a member of the North America Primary Care Research Group (NAPCRG) Special Interest Group for Refugee and Migrant Health. She established and co-leads the Migrant Health Research Group in the International Collaboration for Participatory Health Research (ICPHR).

Academic Qualifications: 

PhD Health Promotion, National University of Ireland, Galway, Ireland.
MA Health Promotion (by research), National University of Ireland, Galway, Ireland.
BA Applied Psychology and Sociology, University College Cork, Ireland.

Professional Experience: 

2009 – 2011 Lecturer in Primary Care – over the bar (Social Scientist), Discipline of General Practice, NUI Galway, Ireland.

2007 – 2009 Lecturer in Primary Care – below the bar (Social Scientist), Department of General Practice, NUI Galway, Ireland.

2004 – 2007 Lecturer in Primary Care, Department of General Practice, NUI Galway, Ireland.

2000 – 2002 Research Fellow, Department of Primary Care and Population Sciences, Royal Free and University College London (UCL) Medical School, London, United Kingdom.

Fellowships 
2002 – 2004 Health Research Board, Health Services Research Fellow, Department of General Practice, NUI Galway, Ireland.

Professional Memberships: 

Association of University Departments of General Practice in Ireland (AUDGPI)
Society of Academic Primary Care (SAPC)
North American Primary Care Research Group (NAPCRG)
International Collaboration for Participatory Health Research (ICPHR)

Research Interests: 

Anne’s research focuses on health equity and community involvement in primary healthcare. She has a specific interest in migrants’ involvement in health since 2002 and was co-ordinator for the EU FP7 funded RESTORE project 2011-2015. She is currently interested in the concept of participatory spaces to enhance our understanding about the co-production of knowledge for action-oriented research. She is exploring this through implementation studies that relate to communication in cross-cultural consultations and ethnic identifiers in primary care. She is also building capacity for participatory health research to involve migrants in health decision-making.

Competitive Grants: 

Anne has a total research income of approximately 9 million euro and is Principal Investigator for the recent projects below:  
PPI IGNITE (2018-2020) - funded by the Health Research Board 
EMH-IC (2016-2019) Ethnic Minority Health in Ireland - building the evidence base to address health inequities  - funded by the Health Research Board
MIMS (2017-2019) Migrants’ Involvement in the development of Migrant Sensitive Healthcare Systems - funded by the Health Service Executive and University of Limerick
Partnership for Health Equity (2011-) - funded by the Health Service Executive and University of Limerick
RESTORE (2011-2015) REsearch into implementation STtrategies to support patients of different ORigins and language background in a variety of European primary care settings - funded by the EU
Primary Care Reform in Ireland (2014-2017) - funded by the Health Research Board
FUSION (2010-2014) User Involvement in Primary Healthcare: Toward a framework for implementation - funded by the Health Research Board

Publication Record: 

Recent Publications 

2022

Gilfoyle, M., MacFarlane, A. and Salsberg, J. (2022) 'Conceptualising, Operationalising, and Measuring Trust in Participatory Health Research Networks: a Scoping Review' Systematic Reviews, 10(10) available: https://bmjopen.bmj.com/content/10/10/e038840.abstract  

Markey, K., MacFarlane, A., Noonan, M., Moloney, M., Huschke, S., O’Donnell, K., O'Donnell, C., Tuohy, T., Mohamed, AH. and Doody, O. (2022) 'Service User and Service Provider Perceptions of Enablers and Barriers for Refugee and Asylum-Seeking Women Accessing and Engaging with Perinatal Mental Health Care Services in the WHO European Region: A Scoping Review Protocol', International Journal of Environmental Research and Public Health, 19(2), 937, available: https://doi.org/10.3390/ijerph19020937  

2021

MacFarlane, A., Dowrick, C., Gravenhorst, K., O'Reilly-de Brúne, M., de Brúne, T., den Muijsenbergh, M., Weel Baumgarten, E., Lionis, C. and Papadakakigh, M. (2021) 'Involving migrants in the adaptation of primary care services in a ‘newly’ diverse urban area in Ireland: The tension between agency and structure', Health & Place, 70, available: https://doi.org/10.1016/j.healthplace.2021.102556 

Manning, M., MacFarlane, A., Hickey, A., Galvin, R., and Franklin, S. (2021) ‘‘I hated being ghosted’ – The relevance of social participation for living well with post-stroke aphasia: Qualitative interviews with working aged adults’, Health Expectations, 24(4), available: https://doi.org/10.1111/hex.13291  

MacFarlane, A., Ogoro, M., de Freitas, C., Niranjan, V., Severoni, S. and Waagensen, E. (2021) 'Migrants’ involvement in health policy, service development and research in the WHO European Region: A narrative review of policy and practice', Tropical Medicine & International Health, available: https://doi.org/10.1111/tmi.13643  

Puthoopparambil, S.J., Phelan, M. and MacFarlane, A. (2021) ‘Migrant health and language barriers: Uncovering macro level influences on the implementation of trained interpreters in healthcare settings’, Health Policy, 31/5, available: https://doi.org/10.1016/j.healthpol.2021.05.018  

Roura, M., W. LeMaster, J., Hannigan. A., Papyan, A., McCarthy, S., Nurse, D., Villarroel, N. and MacFarlane, A. (2021) ‘If relevant, yes; if not, no’: General practitioner (GP) users and GP perceptions about asking ethnicity questions in Irish general practice: A qualitative analysis using Normalization Process Theory’, PloS One, 16(5), e0251192, available: https://doi.org/10.1371/journal.pone.0251192 

Roura, M., Dias, S., LeMaster, J.W., and MacFarlane, A. (2021) ‘Participatory health research with migrants: Opportunities, challenges, and way forwards’, Health Expectations, 24(2), 1–10, available: https://doi.org/10.1111/hex.13201

2020

Cush, P., Walsh, K., Carroll, B., O’Donovan, D., Keogh, S., Scharf, T., MacFarlane, A. and O’Shea, E. (2020) 'Positive health among older Traveller and older homeless adults: A scoping review of life‐course and structural determinants', Health & Social Care in the Community, 28(6), 1961-1978, available: https://doi.org/10.1111/hsc.13060  

Manning, M., MacFarlane, A., Hickey, A., Galvin, R. and Franklin, S. (2020) ‘The relevance of stroke care for living well with post-stroke aphasia: a qualitative interview study with working-aged adults’, Taylor & Francis Group, Disability and Rehabilitation, 28/12, available: https://doi.org/10.1080/09638288.2020.1863483 

MacFarlane, A., Huschke, S., Pottie, K., Hauck, F.R., Grimswold, K., and Harris, M.F. (2020) ‘Barriers to the use of trained interpreters in consultations with refugees in four resettlement countries: a qualitative analysis using normalisation process theory’, BMC Family Practice, 21(259), available: https://doi.org/10.1186/s12875-020-01314-7

Gilfoyle, M., MacFarlane, A. and Salsberg, J. (2020) ‘Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review protocol’, BMJ Open, 10(10), available: https://doi.org/10.1136/bmjopen-2020-038840   

MacFarlane, A. (2020) ‘Optimising individual and community involvement in health decision-making in general practice consultations and primary care settings: A way forward’, European Journal of General Practice, 26(1), available: https://doi.org/10.1080/13814788.2020.1861245

Van den Muijsenbergh, M.E.T.C., LeMaster, J.W., Shahiri, P., Brouwer, M., Hussain, M., Dowrick, C., Papadakaki, M., Lionis, C. and MacFarlane A. (2020) ‘Participatory implementation research in the field of migrant health: Sustainable changes and ripple effects over time’, Health Expectations, 23(2), 306–317, available: https://doi.org/10.1111/hex.13034   

Hannigan, A., Villarroel, N., Roura, M., LeMaster, J.W., Basogomba, A., Bradley, C. and MacFarlane, A. (2020) ‘Ethnicity recording in health and social care data collections in Ireland: where and how is it measured and what is it used for?’, International Journal for Equity in Health, 19(2), available: https://doi.org/10.1186/s12939-019-1107-y  

2019

Tierney, E., Hannigan, A., Kinneen, L., May, C., O’Sullivan, M., King, R., Kennedy, N. and MacFarlane, A. (2019) ‘Interdisciplinary team working in the Irish primary healthcare system: Analysis of ‘invisible’ bottom up innovations using Normalisation Process Theory’, Health Policy, 123(11), 1083-1092, available: https://doi.org/10.1016/j.healthpol.2019.09.002

Villarroel, N., Hannigan, A., Severoni, S., Puthoopparambil, S. and MacFarlane, A. (2019) ‘Migrant health research in the Republic of Ireland: a scoping review’, BMC Public Health, 19, 324, available: https://doi.org/10.1186/s12889-019-6651-2

Manning, M., MacFarlane A., Hickey, A. and Franklin, S. (2019)’ Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and thematic synthesis, PLoS ONE, 14(3), e0214200, available: https://doi.org/10.1371/journal.pone.0214200

MacFarlane, A. (2019) ‘The Helen Lester Memorial Lecture 2018:  The leper squint:  spaces for participation in primary health care’, British Journal of General Practice, 69(682), 255-256, available: https://doi.org/10.3399/bjgp19X702617  

2018

Menamin, R., Tierney, E. and MacFarlane, A. (2018)’ Using a participatory learning and action (PLA) research approach to involve people with aphasia as co-researchers in service evaluation: an analysis of co-researchers’ experiences’, Aphasiology, 32(1), 142-144, available: 10.1080/02687038.2018.1486380

Hannigan, A., Basogomba, A., LeMaster, J., Nurse, D., O’Reilly, F., Roura, M., Villarroel, N. and MacFarlane, A. (2018) ‘Ethnic Minority Health in Ireland—Co-creating knowledge (EMH-IC): a participatory health research protocol’, BMJ open, 8(10), e026335, available: https://doi.org/10.1136/bmjopen-2018-026335 

Hordijk, R., Hendrickx, K., Lanting, K., MacFarlane, A., Muntinga, M. and Suurmond, J. (2018) 'Defining a framework for medical teachers’ competencies to teach ethnic and cultural diversity: Results of a European Delphi study', Medical Teacher, 1-7, available: http://dx.doi.org/10.1080/0142159X.2018.1439160

Tierney, E., McEvoy, R., Hannigan, A. and MacFarlane, A. (2018) ‘Implementing community participation via interdisciplinary teams in primary care: an Irish case study in practice’, Health Expectations, 21(6), 990-1001, available: https://doi.org/10.1111/hex.12692 

O'Reilly-De Brún, M., De Brún, T., O'Donnell, C. A., Papadakaki, M., Saridaki, A., Lionis, C., Burns, N., Dowrick, C., Gravenhorst, K., Spiegel, W., Van Weel, C., Van Weel-Baumgarten, E., Van Den Muijsenbergh, M. and MacFarlane, A. (2018) ‘Material practices for meaningful engagement: An analysis of participatory learning and action research techniques for data generation and analysis in a health research partnership’, Health Expectations, 21, 159-170, available: https://doi.org/10.1111/hex.12598 

 

Higher Degree Supervision: 

Anne is an experienced postgraduate supervisor and is currently co-supervising Meghan Gilfoyle’s PhD about using a trust lens to inform a social network theory of participatory health research. Dr. Jon Salsberg is the primary supervisor.

Additional Information: 

Recent Conferences

2020

MacFarlane, A. (2020) Health Literacy and Communication’ [Keynote Speaker] WHO Health Literacy and Health Communication Symposium, Online December 2020. 

Guilfoyle, M., MacFarlane, A. and Salsberg, J. (2020) ‘Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review’ [Poster] International Collaboration for Participatory Health Research Annual Working Meeting, Online 20-24 Nov. 

Niranjan, V., Doolan I., Gilfoyle, M., Hughes, Z., McCarthy, M., Salsberg, J. and MacFarlane, A. (2020) ‘Evaluating Institutional Readiness for PPI Through Strategic and Reflective Practice: An Example from Ireland’ [Poster] NAPCRG Conference, Online 20-24 Nov.  

Salsberg, J., Doolan, I., Gilfoyle, M., Hughes, Z., McCarthy, M., Niranjan, V. and MacFarlane, A (2020) ‘Building Institutional Capacity for Public & Patient Involvement in Primary Health Care Research: Experiences from Ireland’ [Workshop] NAPCRG conference, Online 20-24 Nov. 

MacFarlane, A. (2020) ‘Combining Normalisation Process Theory and Participatory Learning and Action research: rationale and example from international research’ [Oral] UL HRI Health Implementation Science and Technology cluster and PPI seminar, Online October 2020. 

Hannigan, A. and MacFarlane, A. (2020) ‘Ethnicity data collection in Irish general practices’ [Oral]  
All-Ireland inclusion health network seminar, Online, June 2020 
 
MacFarlane, A., Huschke, S., Pottie, K., Griswold, K., Harris, M.F. and Hauck, F.R. (2020) ‘Barriers to the use of trained interpreters in consultations with refugees in four resettlement countries: A qualitative analysis using Normalisation Process Theory’ [Poster] North American Refugee Health Conference, August 2020 

Manning, M., MacFarlane, A., Hickey, A., Galvin, R. and Franklin, S. (2020) 'What supports living well with aphasia? A qualitative interview study with people with post-stroke aphasia of working-age in Ireland' [Oral], SPHeRE Conference, Dublin, 25 Feb.  

van den Muijsenbergh, M.E.T.C., LeMaster, J.W., Shahiri, P., Brouwer, M., Hussain, M., Dowrick, C., Papadakaki, M., Lionis, C. and MacFarlane A. (2020) 'Participatory implementation research in the field of migrant health: Sustainable changes and ripple effects over time' [Oral], AUDGPI/ICGP Annual General Meeting, Cork, 4-6 Mar. 

McGarry, O., Joy, A., Nolan, S., MacFarlane, A., O’Regan, A. and Hannigan, A. (2020) 'Health needs and healthcare access of vulnerable new communities in Ireland: a primary care perspective' [Oral], AUDGPI/ICGP Annual General Meeting, Cork, 6 Mar. 

Hannigan, A., Collins, C., and MacFarlane, A. (2020) 'Barriers to the implementation of ethnic identifier in primary care: identifying solutions' [Workshop], AUDGPI/ICGP Annual General Meeting, Cork, 6 Mar. 

Gilfoyle, M.L., MacFarlane, A., Clancy, M., Doolan, I., Gallagher, S., Hughes, Z., Jeffers, C., McCarthy, M., Niranjan, V., O’Sullivan, L., Tannehill, D., and Salsberg, J. (2020) 'Evaluating Inter-Organisational Collaboration for Public and Patient Involvement in Health Research' [Oral], AUDGPI/ICGP Annual General Meeting, Cork, 6 Mar. 

Niranjan, V., MacFarlane, A., Woods, B., Jeffers, C., Tannehill, D., Doolan, I., O'Sullivan, L., Clancy, M., Gilfoyle, M., McCarthy, M., Gallagher, S., Hughes, Z. and Salsberg, J. (2020) 'Using informal interactions as a catalyst for meaningful PPI in health research' [Oral], AUDGPI/ICGP Annual General Meeting, Cork, 6 Mar. 

Niranjan, V., MacFarlane, A., Woods, B., Jeffers, C., Tannehill, D., Doolan, I., O'Sullivan, L., Clancy, M., Gilfoyle, M., McCarthy, M., Gallagher, S., Hughes, Z. and Salsberg, J. (2020) 'Training others starts with training ourselves: Co-designing PPI training' [Oral], AUDGPI/ICGP Annual General Meeting, Cork, 6 Mar. 

MacFarlane, A., Huschke, S., Pottie, K., Hauck, F., Griswold, K. and Harris, M. (2020) 'Barriers to the use of trained interpreters in consultations with refugees in four resettlement countries: A qualitative analysis using Normalisation Process Theory' [Oral], AUDGPI/ICGP Annual General Meeting, Cork, 6 Mar. 

Drinkwater, J., MacFarlane, A., Meads, D., Twiddy, M., Chadwick, R.H., Donnelly, A., Gleeson, P., Hannan, A., Hayward, N., Kelly, M., Mir, R., Prestwich, G., Rathfelder, M. and Foy, R. (2020) 'Participatory evaluation of a co-designed intervention to strengthen patient involvement in improving general practice' [Oral], Irish College of General Practitioners Joint Scientific Meeting, Cork, 6 Mar. 

 2019

MacFarlane, A. on behalf of the HSE Working Group (2019) ‘Developing a model to implement the use of trained spoken language interpreters in the Irish healthcare system’ [Oral], HSE Intercultural Seminar, Dublin, 20 Mar. 

Manning, M., MacFarlane, A., Hickey, A. and Franklin, S. (2019) 'Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and qualitative evidence synthesis' [Poster], 5th European Stroke Organisation Conference (ESOC), Milan, 22-24 May. 

Manning, M., MacFarlane, A., Hickey, A. and Franklin, S. (2019) 'Supporting the meaningful participation of people with aphasia to enhance the validity and relevance of research. A description of ongoing techniques' [Poster], 5th European Stroke Organisation Conference (ESOC), Milan, 22-24 May. 

Manning, M., Cuskelly, C., Russ, E., MacFarlane, A., Hickey, A. and Franklin, S. (2019) 'Supporting people with post-stroke aphasia to live well: A cross-sectional survey of Speech & Language Therapists in Ireland' [Poster], 5th European Stroke Organisation Conference (ESOC), Milan, 22-24 May. 

Manning, M., MacFarlane, A., Hickey, A. and Franklin, S. (2019) 'Supporting the meaningful participation of people with aphasia to enhance the validity and relevance of research. A description of ongoing techniques' [Poster], Acquired Brain Injury Ireland (ABII) Seminar, Dublin, Jun 14. 

Drinkwater, J., Meads, D., Twiddy, M., MacFarlane, A., Chadwick, R.H., Donnelly, A., Gleeson, P., Hannan, A., Hayward, N., Kelly, M., Mir, R., Prestwich, G., Rathfelder, M. and Foy, R. (2019) ''Co-designing an intervention to involve patients in organisational decision making' [Oral], Society for Academic Primary Care, Annual Scientific Meeting , Exeter, UK,  5 Jul. 

Drinkwater, J., Meads, D., Twiddy, M., MacFarlane, A., Chadwick, R.H., Donnelly, A., Gleeson, P., Hannan, A., Hayward, N., Kelly, M., Mir, R., Prestwich, G., Rathfelder, M. and Foy, R. (2019) 'Co-designing an intervention to involve patients in organisational decision making' [Oral], International Shared Decision Making Conference, Quebec, Canada, 9 Jul. 

MacFarlane, A. (2019) 'Community participation in Primary Health Care' [International Key Note] European General Practice Research Network Conference, Vigo, Spain, 17-20 Oct. 

MacFarlane, A. (2019) 'Involving migrants in implementation research in primary care settings in western democracies: Hopes and concerns' [Plenary Speaker], London School of Hygiene and Tropical Medicine Symposium, London, 7 Nov. 

Gilfoyle, M.L., MacFarlane, A., Clancy, M., Doolan, I., Gallagher, S., Hughes, Z., Jeffers, C., McCarthy, M., Niranjan, V., O’Sullivan, L., Tannehill, D., and Salsberg, J. (2019) 'Evaluating Inter-Organisational Collaboration for Public and Patient Involvement in Health Research' [Poster], North American Primary Care Research Group, Toronto, 17 Nov. 

MacFarlane, A. (2019) 'Community participation in primary health care' [International Guest Speaker], Building Primary Care Research Capacity, Winnipeg, Manitoba, 21-22 Nov. 

Manning, M., MacFarlane, A., Hickey, A., Galvin, R. and Franklin, S. (2019) 'Supporting the meaningful involvement of people with aphasia in research: Methods for involvement' [Poster], Health Research Institute (HRI) Research Day. University of Limerick, 5 Dec.

2018

O'Sullivan, L., Hughes, Z., Azzopardi, J.C., Tannehill, D., Hand, C., McCarthy, M., Clancy, M., MacFarlane, A., Salsberg, J., Doolan, I., Gallagher, S., O’Doherty, S.  (2018) ‘PPI Ignite at UL: Building Capacity for Effective Public and Patient Involvement in the Mid-West’ [Oral], Association of University Departments of General Practice of Ireland (AUDGPI), Galway, 8-9 Mar. 

O'Sullivan, L., Hughes, Z., Azzopardi, J.C., Tannehill, D., Hand, C., McCarthy, M., Clancy, M., MacFarlane, A., Salsberg, J., Doolan, I., Gallagher, S., O’Doherty, S., (2018) ‘PPI Ignite at UL: Building Capacity for Effective Public and Patient Involvement in the Mid-West’ [Oral], HSE Midwest Public Health Conference, 30 May.

Hannigan, A. and MacFarlane, A. (2018) ’Public and patient involvement in quantitative health research in primary care: a statistical perspective’ [Oral], Joint annual scientific meeting of the Association of University Departments of General Practice Ireland (AUDGPI) and ICGP, Galway, 8- 9 Mar.

MacFarlane, A. (2018) ‘The 5th Helen Lester Memorial Lecture - The Leper’s Squint: Spaces for Participation in Primary Healthcare’, [Keynote] presented at Society of Academic Primary Care, Barts and The London School of Medicine and Dentistry, London, 10 Jul.

MacFarlane, A. (2018) ‘Participation in primary healthcare: the relevance of Participatory Health Research, [Keynote] presented at Health Promotion Conference, NUI, Galway, 7 Jun.

2017

MacFarlane, A. (2017) 'Primary Care Reform in Ireland - An exploration of interdisciplinary team working: levers and barriers to implementation 2014-2017’, [Keynote] presented at Primary Care Occupational Therapy National Study Day, Dublin, Sep.

MacFarlane, A. (2017) 'Guiding the GP Registrar to deliver good care to migrants in Ireland', [Keynote] presented at Irish College of General Practitioners National Trainers Conference, Radisson Blu Hotel, Limerick, 24 Mar.

MacFarlane , A. (2017) 'Inclusion of migrant voices in research: Health status and service utilisation experience of migrants', [Keynote] presented at University of Limerick/University of Boston Joint Seminar, University of Limerick, 1 Jun.

MacFarlane, A. (2017) 'Public & Patient Involvement: Meaningful Engagement', [Keynote] presented at Health Research Institute University of Limerick/University of Limerick Hospitals Clinical Research Unit (CRU), University of Limerick, 30 May.

MacFarlane, A. and Silva, M.M.D.A. (2017) 'Participatory implementation research to improve healthcare for migrants: The EU RESTORE project', [Keynote] presented at International Collaboration for Participatory Health Research Pre Conference National University of Ireland Galway (NUIG), 23 May.

McMenamin, R., Tierney, E. and MacFarlane, A. (2017) 'People with Aphasia as co-researchers in service evaluation: A participatory health research study', [Oral] presented at International Collaboration of Participatory Health Research (ICPHR) Conference, National University of Ireland Galway (NUIG), 23 May.

Puthoopparambil, S.J., Roura, M., Nurse, D. and MacFarlane, A. (2017) 'Developing a model to implement the use of trained spoken language interpreters in the Irish healthcare system', [Oral] presented at 6th Community Interpreting Conference, Trinity College Dublin, 8 Jun.