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Public and Patient Involvement (PPI)

 

Public and Patient Involvement (PPI)

People have expert knowledge about their own health and illness. It is essential that this knowledge is respected and included in health research. This is recognised by international and national agencies such as the World Health Organisation, Health Research Board, Irish Research Council and the Health Service Executive. It also resonates with UL’s commitment to Community Engagement (Broadening Horizons 2015-2019).

The PPI theme was launched in the HRI in 2016 and is a cross cutting theme with Lifestyle and Health, Health Services Delivery and Technology Enhanced Health Outcomes.  The theme is led by Professor Anne MacFarlane, Professor of Primary Healthcare Research at the Graduate Entry Medical School. Professor MacFarlane established and leads the Public and Patient Involvement (PPI) research unit in the Graduate Entry Medical School, which has been designated a World Health Organisation Collaborating Centre for Migrants’ Involvement in health research.

The objective of the PPI theme in the HRI is to develop capacity for meaningful PPI in health research. Current areas of work include:

Our summer school brings together community organisations, patient groups, researchers, students, health service providers and policy makers. The school not only offers a forum for discussion and reflection, but also provides an important setting to network and build relationships. The plenary sessions and interactive workshops focus on a variety of topics including strategies to better engage with research partners and participants, how to improve data analysis, and methods to improve overall research performance.

This research group brings together arts-based and participatory scholars from medicine, nursing & midwifery, and the performing arts, as well as a leading NGO for migrants. Our vision is to develop increased understanding of the role of arts-based methods as participatory strategies for involving migrants in health research.

UL was awarded a ‘PPI Ignite’ Award from the Health Research Board and Irish Research Council in 2017. The purpose of the PPI Ignite is to help universities to support researchers to involve public and patients in their research from the start.

PPI Ignite@ UL was developed with community and health sector stakeholders: Limerick City Community Development Programme and Care Alliance Ireland as well as health sector stakeholders from University Hospital Limerick Patient Advocacy Liaison Services and the HSE Community Care office.

PPI Ignite@ UL draws on the tradition of participatory health research to promote meaningful involvement of the public and patients.

The work focuses on

  • Training in PPI and participatory health research
  • Networking to collaboratively set research priorities
  • Progressing policies and procedures to further strengthen the culture for PPI

The PPI Ignite award is being supported by UL Engage and its mission to integrate civic engagement in UL.

For more information on PPI Ignite @ UL, contact Project Manager, Bernie Woods (bernie.woods@ul.ie) or see https://drive.google.com/open?id=1pb48euXgvJ7SSooxTYw-d475qW2jmqHq.

PPI Ignite @ UL Core Team Members

View PPI Ignite@UL Core Team Members