Public and Patient Involvement (PPI) Research Unit
Public and Patient Involvement (PPI) Research Unit
The Public and Patient Involvement (PPI) Research Unit was established in the Graduate Entry Medical School (GEMS) by Professor Anne MacFarlane. The Unit is designated as a World Health Organization Collaborating Centre for Migrant’s Involvement in Health Research.
We have two interconnected areas of expertise:
- Involving migrants in health research
- Capacity building for public and patient involvement in health research across topics and disciplines
The work of the Unit draws on a variety of disciplines including biostatistics, general practice, psychology, sociology, physiotherapy and speech and language therapy. In addition, we have strong collaborative partnerships with community organisations, other academics, health service planners and policy stakeholders in Ireland and abroad.
Listen to our podcast 'Why involve public and patients in research'
Within the University of Limerick, several other initiatives have synergy with our work in this area.
Professor Anne MacFarlane, B.A., M.A., PhD.
Professor of Primary Healthcare Research, Graduate Entry Medical School (GEMS).
Anne is founder and overall academic lead for the PPI Research Unit. She is the Head of WHO Collaborating Centre for Migrant’s Involvement in Health Research which is hosted in the Unit. She is a social scientist with more than 25 years’ experience using qualitative research methods in health services research. She has specialist expertise in participatory health research, particularly in relation to migrant health. Anne is Principal Investigator for a number of participatory health research projects (see our Research tab). She is theme lead for Public and Patient Involvement in the Health Research Institute (HRI) which focuses on capacity building for public and patient involvement in health research across topics and disciplines.
Anne is involved with international collaborations in Europe and North America to advance the evidence base about best practice for PPI and participatory health research. She is active in projects with WHO Europe, the International Collaboration for Participatory Health Research and the North American Primary Care Research Group. Her current research interests include the sociological concept of space and how this can enhance understanding of participatory spaces in health.
Professor Ailish Hannigan, B.Sc., PhD.
Associate Professor of Biomedical Statistics, GEMS
Ailish is the lead for quantitative research in the PPI Research Unit. She is Principal Investigator for the Vulnerable New Communities project and leads the quantitative work package for HRB EMH-IC. She has over 20 years’ experience as a statistician and educator and acts as statistical consultant both nationally and internationally. Her research interests include population health, the design and analysis of cohort and registry studies, and the potential and challenges for PPI in quantitative health research.
Dr Jess Drinkwater, B.Sc., MBChB Medicine, MRCGP, MRes
UK National Institute of Health Research (NIHR) Doctoral Research Fellow, University of Leeds
Jess is a GP in Bradford and is undertaking a PhD at University of Leeds on participatory research to strengthen the role of patient and public involvement in general practice service improvement. Anne MacFarlane is co-supervisor for the PhD research along with primary supervisor Robbie Foy, Professor of Primary Care at the University of Leeds. Jess is interested in improving health systems, especially primary care, through evidence based policy by understanding how health policy and health systems are shaped by those that use them and work within them.
Dr Jon Salsberg, B.A., M.A., PhD.
Senior Lecturer in Primary Healthcare - Public and Patient Involvement, GEMS
Jon has over 15 years of experience working in community and academic participatory health research and integrated knowledge translation. He is a qualitative researcher with a background in public health promotion and anthropology of development. Jon's research interests are in understanding the theory and practice of multi-stakeholder engagement for co-creating new knowledge and its translation into action, principally in primary care and community health. His recent focus has been in using a social network approach in understanding how community stakeholders take ownership over academic research.
Jon has undertaken partnered research with a broad range of stakeholders including patients, health practitioners, community members and organisations, policy makers and health service decision-makers, as well as working extensively in Indigenous health in Canada. He was a founding member of the Centre for Participatory Research at McGill University, and is an executive committee member of the International Collaboration for Participatory Health Research.
Dr Patrick O’Donnell, MB BCh BAO, MICGP, M.Sc.
Clinical Fellow in Social Inclusion, GEMS and PhD candidate
Patrick is a GP with a particular interest in the delivery of primary care and general practice in areas of deprivation and to marginalised groups including homeless people, drug users and migrants. He is a member of the Partnership for Health Equity, which is led by Prof Anne MacFarlane (UL), Dr Austin O’Carroll (North Dublin City GP Training scheme) and Diane Nurse (HSE Social Inclusion). He is currently conducting a PhD titled ‘Measuring and Operationalising Social Exclusion in the Context of Health in Ireland’, primary supervisor Dr Khalifa Elmusharaf, Senior Lecturer in Public Health, GEMS. As part of this work, he has established and now runs two low-threshold GP clinics in Limerick city for people without access to primary care. Patrick also works as a GP in a family practice in Limerick city. He has completed an MSc in Global Health at Trinity College Dublin and a Specialist Diploma in Teaching, Learning and Scholarship at University of Limerick.
Dr Rose Galvin B.Sc., PhD.
Lecturer in Physiotherapy, School of Allied Health
Rose’s research interests lie in the areas of gerontology and neurology and include the evaluation of novel methods of optimising exercise and motivation to exercise in older people and people with neurological disabilities. She is currently involved in several systematic reviews with meta-analysis, and in medicine management studies of the elderly. She has worked as a research physiotherapist on two pan-European projects that evaluated the impact of novel technologies in the assessment and treatment of people with a range of neurological disabilities. Prior to taking up her post at UL, she was Director of the HRB Centre for Primary Care Research at the Royal College of Surgeons in Ireland.
Úna McInerney, B.A., B.Mus., M.A.
Project Manager, Primary Healthcare Research
Úna joined UL in 2002 and has worked at the Graduate Entry Medical School since 2014. She has many years’ experience leading projects and managing resources. She is also project manager for the WHO Collaborating Centre for Migrant’s Involvement in Health Research. Prior to her work at UL, she qualified as a music therapist at University of Bristol and worked in health and education settings in Ireland, Romania, Bosnia-Herzegovina and Rwanda.
Dr Susann Huschke, M.A., PhD.
Postdoctoral researcher in Social Inclusion and Health (Dean’s Postdoctoral Fellow)
Susann is an anthropologist who researches the interconnected fields of migration, health, and sexuality/gender. She is currently developing a research project on maternal health and migration in Ireland. In her PhD research, she investigated undocumented migrants’ access to healthcare in Berlin, Germany. As a postdoctoral research fellow at Queen’s University Belfast she led a team of researchers in a government funded study on the Northern Irish sex industry. Susann then spent two years at the University of the Witwatersrand, Johannesburg, South Africa, conducting a participatory arts-based project on the health and well-being of sex workers in Soweto. All her research projects incorporated critical, applied components, and Susann has worked in solidarity with grassroots movements and activist organisations such as the Medibuero Berlin, a non-governmental migrant rights organisation, and the Sex Worker Alliance Ireland (SWAI).
Dr Vikram Niranjan, BDS, MSc DPH, DDPH (RCS,Eng), PhD.
Research Assistant PPI IGNITE project
Vikram is a public health specialist with his research focus on public patient involvement, cancer research, quality of life, mix method studies, health promotion programmes, health promoting schools, tobacco control and oral health. He achieved his doctorate with distinction and has well recognition as an academician and dentist. He has over 6 years teaching experience at dental school in India teaching and supervising undergraduate and postgraduate students. He has been international speaker at international conferences and has several paper presentations at conferences. Along with international researchers across the globe, he has successfully conducted sub-plenary sessions at International conferences, had run career advices to public health researchers, hands on sessions and webinars. He is winner of “Outstanding Dentist of the Year -2016” in India by Famdent organisation for his excellent clinical and dental public health practice. Having strong interest in mix methods and qualitative research, he looks forward to international networking and collaboration with public health researchers.
Mamobo Ogoro, B.A, M.A.
Research Assistant, HRB EMH-IC
Mamobo is UL’s first University of Sanctuary PhD fellow. She has undertaken both her undergraduate and master’s degrees in the Department of Psychology at UL and is doing PhD research under the supervision of Dr. Mairead Moriarty and Dr. Anca Minescu. Her research interests include Migration, Belonging, Multicultural Identities & Discrimination. Mamobo has years of experience working with initiatives, such as the Health Hub Sanctuary Project, which promotes social inclusion, psychological & research-based psycho-social supports for refugees and asylum seekers in the Limerick area. She is a Research Assistant on the HRB EMH-IC project
Meghan Gilfoyle, B.A.Sc., M.Sc.
Meghan is a PhD candidate working with the Public and Patient Involvement (PPI) Research Unit, under the supervision of Dr Jon Salsberg and co-supervisor Professor Anne MacFarlane. Her PhD thesis is ‘Evaluating Inter-Organisational Collaboration for Public and Patient Involvement in Health Research’.
Her previous academic and work experience has had a public health and health systems focus, with specific areas of expertise in cancer prevention and screening, epidemiology, statistical analysis of population health data, evidence-informed public health practice, and knowledge translation. Meghan has a keen interest in engaging public and patient groups in health research in a meaningful and respectful manner, specifically older adults. For instance, she has previously worked with entrepreneurs to identify how to best engage people with dementia in the design, testing, and commercialization of an information communication technology. As a Canadian researcher new to Ireland, Meghan looks forward to innovative research collaborations as well as networking opportunities within an international context.
Senior Administrator, PPI Research Unit.
Laura joined the Research team in February 2019. She worked previously in the Department of Allied Health and has a wealth of experience in administration.
For publications relating to our projects, please see our Recent Publications section
PPI IGNITE (2018-2020)
Principal Investigator: Professor Anne MacFarlane, UL
Core Team: Imelda Doolin, Sinead O’Doherty, Stephen Gallagher, Jon Salsberg, Bernie Woods (UL), Zoe Hughes (Care Alliance Ireland) Deborah Tannehill & Juan Carlos Azzopardi (Limerick City Community Development Project), Catherine Hand & Miriam McCarthy (University Hospital Limerick), Marguerite Clancy (HSE Primary Care CHO Area 3)
Partners: Michelle Gardner (Medical Research Charities group), Harriet Doig (MS Ireland), Sandra Galvin (NUI Galway), Dr Tina Cook (Northumbria University), Prof Jennie Popay (Lancaster University), Dr Derick Mitchell (Irish Platform for Patient Organisations, Science and Industry)
Funding: Health Research Board (HRB) €348,909
Project description: To build capacity among academics, members of the public/patients and health sector colleagues to work together in participatory health research projects. We are developing training, networking events and changes in policy in UL to support high quality research partnerships between academics, community and health sector stakeholders.
Ethnic Minority Health in Ireland - building the evidence base to address health inequities (EMH-IC)
Principal Investigator: Professor Anne MacFarlane, UL
Co-applicants: Professor Ailish Hannigan, UL; Dr Joseph Le Master, University of Kansas; Dr Maura Adshead, UL; Alphonse Basogomba, Intercultural and Diversity Education Center Ireland; Dr Fiona O'Reilly, UL
Funding: HRB Health Research Award €329,946
Project description: This is a participatory health research project using mixed methods to build the evidence base about migrant’s and Traveller’s health status. Our community partner is Shannon Family Resource Centre (Co-ordinator Colette Bradley) and our health sector partner is the HSE National Social Inclusion Office (led by Diane Nurse)
Project Team: Dr Maria Roura, UL, Sharon McCarthy and Anna Papyan, Shannon Family Resource Centre.
Migrants’ Involvement in the development of Migrant Sensitive Healthcare Systems (MIMS)
Collaborators: Professor Anne MacFarlane, UL; Professor Ailish Hannigan, UL; Dr Santino Severoni, WHO; Dr Soorej Jose, UL, Diane Nurse, HSE National Social Inclusion
Funding: HRI and HSE €80,000
1) to build networks with migrant organisations regarding health research
2) knowledge transfer from the EU RESTORE project
3) support WHO activities for evidence production and synthesis e.g. through the Health Evidence Network (HEN) reports.
See completed 2016 HEN report on the public health implications of the diversity of definitions for migrants here.
See work with HSE Working Group on developing a model for the implementation of trained interpreters in the Irish healthcare system here.
See completed 2018 HEN report on strategies to address communication barriers experienced by refugees and migrants in health care settings across the WHO European Region here.
Project Team: Dr Orla McGarry and Maria Manuela de Almeida Silva, UL.
Vulnerable New Communities (2018-2019)
Principal Investigator: Professor Ailish Hannigan, UL
Collaborators: UL - Professor Anne MacFarlane, Dr. Andrew O’Regan and HSE Social Inclusion CHO5 - Suzanne Nolan, Angela Joy
Funding: GEMS Strategic Research Fund and HSE Social Inclusion Office €50,000
Project aim: A UL/HSE collaboration researching needs and service development for refugees, asylum seekers and Roma communities
Project Team: Dr Orla McGarry, UL.
Partnership for Health Equity (2011-)
Collaborators: Professor Anne MacFarlane, UL; Dr. Patrick O’Donnell UL, Dr Austin O’Carroll, North Dublin City GP Training Programme; Diane Nurse, Tony Quilty, HSE Social Inclusion; Claire Collins, Irish College of General Practitioners
Project aim: The aim of the PHE is to improve access to primary healthcare for marginalised groups, including homeless persons, drug users, travellers, migrants and others. This is achieved through a range of research, education and dissemination activities.
REsearch into implementation STtrategies to support patients of different ORigins and language background in a variety of European primary care settings
Principal Investigator: Professor Anne MacFarlane, UL
Co-applicants: Professor Kate O’Donnell and Professor Frances Mair, University of Glasgow; Professor Chris Dowrick, University of Liverpool; Professor Christos Lionis, University of Crete; Dr Maria van den Muijsenbergh and Evelyn van Weel-Baumgarten, Radboud University Nijmegen Medical Centre; Dr Wolfgang Spiegel, Medical University of Vienna.
Funding: EU FP7 €2.9 million
Project aim: to improve healthcare for migrants in Europe. This was an implementation science project which is designed to prospectively investigate and support the implementation of guidance and training initiatives designed to support communication in cross-cultural consultations in primary care using a unique combination of Normalisation Process Theory and Participatory Learning and Action research.
Primary Care Reform in Ireland (2014-2017)
Primary Care Reform in Ireland: An analysis of top down and bottom up innovation
Principal investigator: Professor Anne MacFarlane, Graduate Entry Medical School, UL
Co-applicants: Professor Walter Cullen, UCD; Dr Norelee Kennedy, Clinical Therapies, UL; Libby Kinneen, HSE; Professor Carl May, University of Southampton
Collaborators: Department of Health & Children; Sarah Jane Hennelly, Paul Partnership Ltd Limerick; Dr Ray O’Connor, Limerick; Brian Murphy, HSE; Mary Tinnelly, HSE; Professor Ailish Hannigan, UL
Researchers: Edel Tierney and Madeleine O'Sullivan
Funding: HRB Health Research Award €329,269
Project aim: An evaluation of the reform processes relating to the development of primary care teams as outlined in the 2001 Department of Health primary care strategy. This qualitative analysis, using Normalisation Process Theory (NPT), addressed the gap in knowledge about the reform of our primary care services. Policy Brief Interdisciplinary Team Working in Ireland: A New Direction 16 years on.
User Involvement in Primary Healthcare: Toward a framework for implementation.
Principal investigator: Professor Anne MacFarlane, UL
Co-applicants: Mary O’Reilly de Brún, NUI Galway; Rachel McEvoy, HSE
Collaborators: Tomas de Brun, NUI Galway; Professor Anne Rogers, University of Southampton; Katya Okonkwo, Galway Migrant Service
Researchers: Edel Tierney, Madeleine O’Sullivan
Funding: HRB Health Research Award €210,600
Project aim: To assess the impact of community participation in primary care from the perspectives of the key stakeholders involved. The project resulted in the publication of a Framework for Implementation of Community Participation in Primary Healthcare
UK National Institute of Health Research (NIHR) Doctoral Research Fellow Jess Drinkwater is exploring Public and Patient Participation Groups in English General Practice
University of Limerick funded PhD candidate Patrick O’Donnell is exploring measurement and operationalisation of social exclusion in the context of health in Ireland.
WHO Collaborating Center for Migrant’s Involvement in Health Research
The centre's main goal is to build capacity for participatory health research to involve migrants in health decision-making. There is increasing attention to the involvement of the public and patients in health, and migrants are frequently excluded from participatory spaces that inform policy, service and research developments. Stakeholders need clear guidance to address this situation and access to appropriate tools and training materials. These will help to bridge the gap between the rhetoric and practice of migrants’ involvement in health decision-making because migrants’ voices will be connected with relevant dialogues and debates. This will lead to an increasing understanding of migrants’ needs, more responsive policies and greater health equity.
The center has two main goals in the next four years (2019-2023):
1) To develop guidance on the use of participatory health research, at the request of WHO, by identifying international principles and best practices for the meaningful involvement of migrants in a health research partnership
2) To support WHO to devise and pilot a participatory health research training course and manual to build capacity for the meaningful involvements of migrants and other key stakeholders in health research partnerships
Villarroel, N., Hannigan, A., Severoni, S., Puthoopparambil, S. and MacFarlane, A. (2019) ‘Migrant health research in the Republic of Ireland: a scoping review’, BMC Public Health, 19, 324, available: https://doi.org/10.1186/s12889-019-6651-2
Manning, M., MacFarlane A., Hickey, A. and Franklin, S. (2019)’ Perspectives of people with aphasia post-stroke towards personal recovery and living successfully: A systematic review and thematic synthesis, PLoS ONE, 14(3), e0214200, available: https://doi.org/10.1371/journal.pone.0214200
MacFarlane, A. (2019) ‘The Helen Lester Memorial Lecture 2018: The leper squint: spaces for participation in primary health care’, British Journal of General Practice, 9; 69 (682): 255-256, available https://doi.org/10.3399/bjgp19X702617
McMenamin, R., Tierney, E. and MacFarlane, A. (2018)’ Using a participatory learning and action (PLA) research approach to involve people with aphasia as co-researchers in service evaluation: an analysis of co-researchers’ experiences’, Aphasiology, 32(1), 142-144, doi: 10.1080/02687038.2018.1486380
Hannigan, A. (2018) ‘Public and patient involvement in quantitative health research: A statistical perspective’, Health Expectations, 21(6), 939-943, available: https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12800https://onlinelibrary.wiley.com/doi/full/10.1111/hex.12800
Harris, J., Cook, T., Gibbs, L., Oetzel, J., Salsberg, J., Shinn, C., Springett, J., Wallerstein, N. and Wright, M. (2018)‘Searching for the Impact of Participation in Health and Health Research: Challenges and Methods’, BioMed Research International, 2018, available: https://www.hindawi.com/journals/bmri/2018/9427452/
Khayyat Kholghi, M., Bartlett, G., Phillips, M., Salsberg, J., McComber, A., MaCaulay, A.C. (2018) ‘Evaluating an Indigenous Health Education Program for Diabetes Prevention: using lessons learned through Community Talking Circles’, Family Practice, 35(1), 80–87, available: https://doi.org/10.1093/fampra/cmx068
Hannigan, A., Basogomba, A., LeMaster, J., Nurse, D., O’Reilly, F., Roura, M., Villarroel, N. and MacFarlane, A. (2018) ‘Ethnic Minority Health in Ireland—Co-creating knowledge (EMH-IC): a participatory health research protocol’ BMJ open, 8(10), p.e026335.
Hordijk, R., Hendrickx, K., Lanting, K., MacFarlane, A., Muntinga, M. and Suurmond, J. (2018) 'Defining a framework for medical teachers’ competencies to teach ethnic and cultural diversity: Results of a European Delphi study', Medical Teacher, 1-7, available: http://dx.doi.org/10.1080/0142159X.2018.1439160.
Tierney, E., McEvoy, R., Hannigan, A. and MacFarlane, A. (2018) ‘Implementing community participation via interdisciplinary teams in primary care: an Irish case study in practice’, Health Expectations, available: https://onlinelibrary.wiley.com/doi/abs/10.1111/hex.12692.
O'Reilly-De Brún, M., De Brún, T., O'Donnell, C. A., Papadakaki, M., Saridaki, A., Lionis, C., Burns, N., Dowrick, C., Gravenhorst, K., Spiegel, W., Van Weel, C., Van Weel-Baumgarten, E., Van Den Muijsenbergh, M. and MacFarlane, A. (2018) ‘Material practices for meaningful engagement: An analysis of participatory learning and action research techniques for data generation and analysis in a health research partnership’, Health Expectations, 21, 159-170. doi: 10.1123/pes.2015-0081
De Brun, T., O'Reilly-De Brun, M., Van Weel-Baumgarten, E., Burns, N., Dowrick, C., Lionis, C., O'Donnell, C., Mair, F. S., Papadakaki, M., Saridaki, A., Spiegel, W., Van Weel, C., Van Den Muijsenbergh, M. and MacFarlane, A. (2017) ‘Using Participatory Learning & Action (PLA) research techniques for inter-stakeholder dialogue in primary healthcare: an analysis of stakeholders' experiences’, Research involvement and engagement, 3 (1), 28. doi: 10.1186/s40900-017-0077-8
O'Donnell, C. A., Mair, F. S., Dowrick, C., O’Reilly-De Brún, M., De Brún, T., Burns, N., Lionis, C., Saridaki, A., Papadakaki, M., Van Den Muijsenbergh, M., Van Weel-Baumgarten, E., Gravenhorst, K., Cooper, L., Princz, C., Teunissen, E., Van Den Driessen Mareeuw, F., Vlahadi, M., Spiegel, W. and MacFarlane, A. (2017) ‘Supporting the use of theory in cross-country health services research: a participatory qualitative approach using Normalisation Process Theory as an example’, BMJ Open, 7 (8). doi: 10.1136/bmjopen-2016-014289
Roura, M. (2017) ‘Unravelling migrants’ health paradoxes: a transdisciplinary research agenda’, Journal of Epidemiology and Community Health, 71, 870. doi.org/10.1136/jech-2016-208439
MacFarlane, A., Galvin, R., O’Sullivan, M., McInerney, C., Meagher, E., Burke, D. and LeMaster, J.W. (2017) ‘Participatory methods for research prioritization in primary care: an analysis of the World Café approach in Ireland and the USA’, Family practice, 34(3), 278-284. doi: https://doi.org/10.1093/fampra/cmw104
Papadakaki, M., Lionis, C., Saridaki, A., Dowrick, C., de Brún, T., O'Reilly-de Brún, M., O'Donnell, C.A., Burns, N., van Weel-Baumgarten, E., van den Muijsenbergh, M., Spiegel, W. and MacFarlane, A. (2017) 'Exploring barriers to primary care for migrants in Greece in times of austerity: Perspectives of service providers', European Journal of General Practice, 23(1) 128 - 134. doi: 10.1080/13814788.2017.1307336
Teunissen, E., Gravenhorst, K., Dowrick, C., Van Weel-Baumgarten, E., Van den Driessen Mareeuw, F., de Brún, T., Burns, N., Lionis, C., Mair, F.S., O’Donnell, C., O’Reilly-de Brún, M., Papadakaki, M., Saridaki, A., Spiegel, W., Van Weel, C., Van den Muijsenbergh, M. and MacFarlane, A. (2017) 'Implementing guidelines and training initiatives to improve cross-cultural communication in primary care consultations: a qualitative participatory European study', Int J Equity Health, 16(1), 32. doi: 10.1186/s12939-017-0525-y
O’Donnell, P., Tierney, E., O’Carroll, A., Nurse, D. and MacFarlane, A. (2016) ‘Exploring levers and barriers to accessing primary care for marginalised groups and identifying their priorities for primary care provision: a participatory learning and action research study’, International Journal for Equity in Health, 15(1), 197. doi: 10.1186/s12939-016-0487-5
Tierney, E., O’Sullivan, M., Hickey, L., Hannigan, A., May, C., Cullen, W., Kennedy, N., Kineen, L. and MacFarlane, A. (2016) ‘Do primary care professionals agree about progress with implementation of primary care teams: results from a cross sectional study’, BMC Family Practice, 17(1), 163. doi: 10.1186/s12875-016-0541-9
Lionis, C., Papadakaki, M., Saridaki, A., Dowrick, C., O'Donnell, C. A., Mair, F. S., van den Muijsenbergh, M., Burns, N., de Brún, T., O’Reilly-de Brún, M., van Weel-Baumgarten, E., Spiegel, W. and MacFarlane, A. (2016) ‘Engaging migrants and other stakeholders to improve communication in cross-cultural consultation in primary care: a theoretically informed participatory study’, BMJ open, 6(7), e010822. DOI:10.1136/bmjopen-2015-010822
de Brún, T., O’Reilly-de Brún, M., O’Donnell, C. A. and MacFarlane, A. (2016) ‘Learning from doing: the case for combining normalisation process theory and participatory learning and action research methodology for primary healthcare implementation research’, BMC Health Services Research, 16(1), 346. DOI: 10.1186/s12913-016-1587
O'Donnell, C. A., Burns, N., Mair, F. S., Dowrick, C., Clissmann, C., van den Muijsenbergh, M., Weel-Baumgarten, E., Lionis, C., Papadakaki, M., Saridaki, A., de Brun, T. and MacFarlane, A. (2016) ‘Reducing the health care burden for marginalised migrants: The potential role for primary care in Europe’, Health Policy, 120(5), 495-508. doi: 10.1016/j.healthpol.2016.03.012
O’Reilly-de Brún, M., de Brún, T., Okonkwo, E., Bonsenge-Bokanga, J.S., Silva, M.M.D.A., Ogbebor, F., Mierzejewska, A., Nnadi, L., van Weel-Baumgarten, E., van Weel, C. and van den Muijsenbergh, M. and MacFarlane, A. (2016) ‘Using Participatory Learning & Action research to access and engage with ‘hard to reach’migrants in primary healthcare research’, BMC health services research, 16(1), 25. DOI: 10.1186/s12913-015-1247-8
O’Donnell, P. & Lawson, E. (2016) ‘Managing physical health problems in people who inject drugs’, British Journal of General Practice, 66(642), 48-49. doi.org/10.3399/bjgp16X683365
O'Reilly, F., Barror, S., Hannigan, A., Scriver, S., Ruane, L., MacFarlane, A. and O'Carroll, A. (2015) Homelessness: An unhealthy state: Health status, risk behaviours and service utilisation among homeless people in two Irish cities Dublin: The Partnership for Health Equity.
Teunissen, E., Van Bavel, E., Van Den Driessen Mareeuw, F., MacFarlane, A., van Weel-Baumgarten, E., van den Muijsenbergh, M. and van Weel, C. (2015) ‘Mental health problems of undocumented migrants in the Netherlands: A qualitative exploration of recognition, recording, and treatment by general practitioners’, Scandinavian Journal of Primary Health Care, 33(2), 82-90. doi: 10.3109/02813432.2015.1041830
O'Reilly-de Brún, M., MacFarlane, A., de Brún, T., Okonkwo, E., Bonsenge Bokanga, J. S., Manuela De Almeida Silva, M. and van Weel, C. (2015) ‘Involving migrants in the development of guidelines for communication in cross-cultural general practice consultations: a participatory learning and action research project’, BMJ Open, 5(9), e007092. doi: 10.1136
O’Sullivan, M., Cullen, W. and MacFarlane, A. (2015) ‘Primary care teams in Ireland: a qualitative mapping review of Irish grey and published literature’, Irish Journal of Medical Science, 184(1), 69-73. doi: 10.1007
McMenamin, R., Tierney, E. and MacFarlane, A. (2015) ‘Addressing the long term impacts of aphasia: How far does the Conversation Partner Programme go’, Aphasiology, 29(8), 889-913. doi: 10.1080/02687038
Mc Menamin, R., Tierney, E. and MacFarlane, A. (2015) ‘Who decides what criteria are important to consider in exploring the outcomes of conversation approaches? A participatory health research study’, Aphasiology, 29(8), 1-25. doi: 10.1080/02687038.2015.1006564
Hickey, L., Hannigan, A., O'Regan, A., Khalil, S., Meagher, D. and Cullen, W. (2015) ‘Psychological morbidity among young adults attending primary care: a retrospective study’, Early Intervention in Psychiatry. doi: 10.1111/eip.12284
de Brún, T., O’Reilly-de Brún, M., van Weel-Baumgarten, E., van Weel, C., Dowrick, C., Lionis, C. and MacFarlane, A. (2015) ‘Guidelines and training initiatives that support communication in cross-cultural primary-care settings: appraising their implementability using Normalization Process Theory’, Family Practice, 32, 420-425. doi: 10.1093
Tierney, E., McEvoy, R., O'Reilly‐de Brún, M., Brún, T., Okonkwo, E., Rooney, M. and MacFarlane, A. (2014) ‘A critical analysis of the implementation of service user involvement in primary are research and health service development using normalization process theory’, Health Expectations, 1(32). doi: 10.1111/hex.12237
McEvoy, R., Ballini, L., Maltoni, S., O'Donnell, C. A., Mair, F. S. and MacFarlane, A. (2014) ‘A qualitative systematic review of studies using the normalization process theory to research implementation processes’, Implementation Science, 9(1). doi: 10.1186/1748-5908-9-2
Mc Menamin, R., Mc Grath, M., Cantillon, P. and MacFarlane, A. (2014) ‘Training socially responsive health care graduates: Is service learning an effective educational approach’, Medical teacher, 36(4), 291-307. doi: 10.3109/0142159X.2013.873118
MacFarlane, A., O'Reilly-De Brún, M., De Brún, T., Dowrick, C., O'Donnell, C., Mair, F. and Clissmann, C. (2014) ‘Healthcare for migrants, participatory health research and implementation science-better health policy and practice through inclusion. The RESTORE project’, European Journal of General Practice, 20(2), 148-152. doi: 10.3109/13814788.2013.868432
MacFarlane, A., and O'Donnell, C. (2014) ‘Who are we and where are we going? Primary care academics in non-clinical posts’, Primary Health Care Research & Development, 15(01), 96-103. doi: 10.1017/S1463423612000540
PPI News & Events
Congratulations to Dr Edel Tierney who graduated with a PhD in August 2019. Edel’s research was about involving communities in Primary Care Teams.
Research Unit designated as WHO Collaborating Centre
The Public and Patient Involvement Research Unit is delighted to be designated as a World Health Organization Collaborating Centre for Migrant’s Involvement in Health Research (2019-2023). The Centre will be led by Anne MacFarlane, Professor of Primary Healthcare Research at the Graduate Entry Medical School. It will build capacity for meaningful involvement of migrants in health research partnerships, through the identification of international principles for best practice and the development of tailored training.
WHO seminar on Migrant and Refugee health
University of Limerick held the World Health Organization seminar on Monday 13th May, 2019 and presented the WHO Report on the Health of Refugees and Migrants in the WHO European Region. A programme for the event is below.
Welcome to Dr Vikram Niranjan who has joined the PPI Research Unit as a Research Assistant on the PPI IGNITE project.
Vikram comes from a public health background and will be working with Dr Jon Salsberg on the PPI Ignite project on monitoring and evaluation.
Report published by the World Health Organisation
GEMS staff members Dr Orla McGarry, Professor Ailish Hannigan and Professor Anne MacFarlane co-authored a report recently published by the World Health Organisation as part of the WHO Health Evidence Network (HEN) series.
The report is based on a scoping review that examined strategies that have been implemented and evaluated to address communication barriers experienced by refugees and migrants in health care settings across the WHO European Region.
The report was launched at the ministerial lunch at the 68th session of the WHO Regional Committee for Europe, Rome, 17–20 September 2018. Health Ministers and high-level representatives of the 53 member states of the WHO European Region as well as partner organizations and civil society attended the 68th session.
Health Research Board Knowledge Exchange and Dissemination Scheme (KEDS) award
Prof Anne MacFarlane (PI) and Prof Ailish Hannigan (co-applicant) have been awarded €27,113 from the Health Research Board Knowledge Exchange and Dissemination Scheme (KEDS) for a project titled ‘Collecting and using data about ethnicity in healthcare - a drama’
Dr Jon Salsberg - Oxford Journal's Family Practice 'Best paper - 2018' award
Dr Jon Salsberg’s paper "The shifting dynamics of social roles and project ownership over the lifecycle of a community-based participatory research project" has been selected by Oxford Journal's Family Practice and the Associate Editors as ‘Best paper – 2018’ based on impact, novelty and relevance to primary care research. Jon was presented with the award at the North America Primary Care Research Group conference in Chicago on 11 November 2018.
Welcome to Dr Kieran Kennedy, Lecturer from NUI Galway School of Medicine who has joined us for a sabbatical from July 2018 to July 2019. Kieran brings expertise on the forensic healthcare of children and adults who experience sexual violence. His research seeks to improve the care available to migrants who experience sexual violence.